Being a part of a non-profit organization, ISOP has very little direct funding and relies greatly on the generous donations of others to help us carry out our mission. Donations to ISOP help fund our Early Treatment Project and supports family and medical outreach and educational programs.
Welcome to The Infantile Scoliosis Outreach Program
The Infantile Scoliosis Outreach Program (ISOP) is pivotal in connecting families of children with progressive infantile scoliosis to resources and information needed to make the best choices possible in the care of their child. As you view our site you will find current and relevant information on infantile scoliosis, such as Early Treatment with serial corrective plaster jackets/casts, and other research pertinent to progressive infantile scoliosis.
ISOP is moving forward in our mission to educate and advocate on behalf of children living with scoliosis via our various programs. Through the CAST online support group, hundreds of parents come together to share information and experiences and to make lifelong connections with each other. Through our Medical and Family Outreach Programs, and our Early
Treatment Program (ETP) Seminars, ISOP is heightening awareness among the medical community and general public about the importance of Early Treatment for progressive infantile scoliosis, and helping to provide access to the most progressive care options available to infants and children effected by this condition.
Support ISOP when you buy one of thes quality T-shirts
Make a difference and get the word out that ISOP is helping save the lives of children with Infantile Scoliosi. Each t-shirt features the ISOP logo and the words,: "Save a Baby's Life, Champion Straight Spines".
These quality t-shirts are available in youth and adult sizes.
Order yours today by Calling
Parent Initiated Event A Big Winner for ISOP...
When their beautiful 15 month old daughter, Karleigh, was diagnosed with progressive infantile scoliosis (PIS), Kim Westmiller and her husband had no idea what they were up against. Fortunately, they were able to connect with Heather Hyatt Montoya and the Infantile Scoliosis Outreach Program (ISOP). Through Heather and ISOP, they found answers to their questions and the resources that led them to Early Treatment with Mehta Casting.These specialized EDF casts are applied every 8 weeks and continue to have a straightening effect on 3 year old Karleigh’s spine.
Thankful for their daughter's progress and wanting to give something back, the Westmillers decided to hold a special event that would celebrate Karleigh's amazing success and also help raise money for ISOP so that other parents of children with infantile scoliosis could also access the kind of help and resources that they had received.
On October 20, 2013, The Westmillers hosted the first ever, Karleigh's Cause, at Hearthstone Manor in Depew, NY. The surrounding community rallied around Karleigh's Cause by attending the event, which featured Terry Buchwald’s, Elvis-inspired, Tribute to the King, as well as live and silent auctions to help raise money for ISOP. In total, the event raised nearly $14,000 for ISOP!
Karleigh's parents are a powerful testament to the steady devotion and determination it takes to navigate the many health options and difficult decisions they faced upon learning of their daughter's potentially fatal condition. Also impressive, is the selfless approach and tireless effort they put into making Karleigh's Cause a huge success, ensuring that other families of children facing similar circumstances will have the needed resources, support and opportunities for treatment that ISOP helps provide.
Thanks to you and Karleigh, and the overwhelming support of your community, event sponsors and volunteers, Karleigh’s Cause was not only an amazing success but truly inspirational.
On behalf of the Infantile Scoliosis Outreach Program (ISOP) and the many families and children who will benefit from your generosity, we say, Thank You!
Everyone who meets my son, Jackson, immediately thinks he is quite the charmer! I sincerely believe that is partially due to his innate personality, and partially due to the resilience and character he has developed on his journey with Progressive Infantile Scoliosis (PIS).
Jackson was born on May 5th, 2010, weighing a very average 7lb 6oz. He very quickly became the love of my life and a very happy baby. Other than his reflux, Jackson seemed to be healthy and thriving. When Jax was 4 months old, my husband expressed a concern to me that he thought Jackson’s back looked crooked. I didn’t think much of his comment and assured my husband it was probably because Jackson’s core muscles weren’t yet strong enough to support his weight. The very same day, my mother said to me: “Sometimes when I’m rocking Jackson to sleep, it feels like one side of his back is bulging.” Suddenly, I began to worry that something might be awry with my seemingly perfect little guy.
While exploring his garden Cole finds a crooked flower. Determined to help the flower grow straight, Cole tries everything he can think of, including milk to make it grow stronger, massage to work out it's kinks, even a hair iron. Finally, with a little bit of help, he finds a gentle cure, and soon his flower is the tallest, straightest in the garden.
All proceeds from this book go to the Infantile Scoliosis Outreach Program. The Infantile Scoliosis Outreach Program helps train doctors in and connect parents to this life saving treatment. Without them our son would not be where he is today!
How to give your baby relief while wearing a cast: The "Flossing" process is recommended for children undergoing the casting process and is an effective way to slough off dead skin and prevent potential skin issues. The material used to floss is a basic pair of nylons and is recommended for children with no skin issues under cast.
Watch the video on YouTube by clicking on the image to the left.
Join the C.A.S.T Support Group Today!
The C.A.S.T. Support Group was developed to give families a way to communicate what we have in common; our young children with scoliosis. We can share our experiences regarding traditional and alternative treatments, and discuss the pros and cons of each.
This very active discussion group is hosted by Yahoo Groups and has a constantly growing membership. By joining, you'll have access to a number of informative files, photos and links having to do with infantile scoliosis. Best of all, it's free! Join Today!
A Message from Dr. Min Mehta
Dr. Min Mehta
The study "Growth as a corrective force in the Early Treatment of progressive infantile scoliosis," JBJS 2005 has contributed to furthering the aim of reversing progressive scoliosis in infancy by demonstrating that far from being an adverse factor, the vigorous growth in infancy is the principal force in converting a progressive infantile scoliosis into a straight spine by early treatment. This perception of growth working as a corrective force in childhood deformities should alter the aim of the treatment of infantile scoliosis from containment to cure, and (realize) a future when many more children with progressive deformity may be restored to normal appearance and function. ~ Min Mehta, MD. FRCS
Spreading the Word...
The Infantile Scoliosis Outreach Program (ISOP) would not be where it is today without the persistence of parents. After all, ISOP was founded by a mother who was searching for a more gentle, non-surgical method of care to treat her infant with Progressive Infantile Scoliosis (a.k.a. Early Onset Scoliosis). Many parents have dedicated their time, resources, and even finances to advance ISOP’s mission and goals. Now, more than ever, we must each do what we can to perpetuate this forward momentum. As with most things in life, reaching a goal takes time, people to help share the work, and money. As you sit at your computer, reading the amazing personal stories of healing on this website, do you ever wonder what you can do to help? Learn More