Scoliosis Kids Australia:
Our mission is to educate and advocate on behalf of children living with scoliosis via our various programs.
http://www.scoliosiskidsaustralia.com/
Lynx Collaborative Care Network:
Through the Lynx Collaborative Care Network, our participants and their families utilize the services of medical experts including Physician and Nurse Consultants, Researchers, and key resources from across the country and abroad. Because Lynxcare services are individualized, we are able to spend whatever time is required with the participant.
http://lynxcare.net/
Arthrogryposis Multiplex Congenita (AMC):
Group seeks to provide and encourage more understanding and mutual support between those diagnosed. Group also seeks to create a higher standard of AMC awareness via conventions, meetings, and studies.
http://www.amcsupport.org
BabyLegs
BabyLegs protect crawling babies' knees and keep little legs warm, especially the often exposed skin between the sock and the bottom of the pant or skirt.
http://www.babylegs.net
C.A.S.T
The C.A.S.T. Support Group was developed to give families a way to communicate what we have in common; our young children with scoliosis. We can share our experiences regarding traditional and alternative treatments, and discuss the pros and cons of each. This very active discussion group is hosted by Yahoo Groups and has a constantly growing membership. By joining, you'll have access to a number of informative files, photos and links having to do with infantile scoliosis. Best of all, it's free!
Join Today!
Chiari Malformation and Syringomyelia:
The American Syringomyelia Alliance Project, Inc. (ASAP) is a non-profit, 501(c)(3), member supported organization, a nationwide clearinghouse for information regarding Chiari (CM) and syringomyelia (SM) and related disorders.
http://www.asap.org
Christus Santa Rosa Children's Hospital-Thoracic Institute:
The Thoracic Institute of CHRISTUS Santa Rosa Children’s Hospital was the first site in the world to perform titanium rib implants, and continues to be a leader in the field. The expandable titanium rib was developed by Robert Campbell, M.D., pediatric orthopedic surgeon and Melvin Smith, M.D., pediatric general surgeon at CHRISTUS Santa Rosa Children’s Hospital.
http://www.christussantarosa.org/childrens/titaniumRib.htm
Cryopak
Cryopak manufactures temperature controlled solutions for the pharmaceutical and life science industry, food packaging, home health, retail and fragile components electronics industries.
http://www.cryopak.com
Ehler's-Danlos:
Ehlers-Danlos National Foundation creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome by creating and distributing accurate information, providing a network of support and communication, and fostering and funding reseach.
http://www.ednf.org
Jeune's Syndrome:
Madison's Foundation is dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening diseases, and to facilitating effective communication among parents, physicians and medical experts.
http://www.madisonsfoundation.org
Marfan's Syndrome:
The National Marfan Foundation is dedicated to saving lives, and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.
http://www.marfan.org
Nelson's Skincare Products
Europe's oldest and the UK's largest manufacturer of homeopathic medicines.
http://www.nelsonshomoeopathy.co.uk
Neurofibromatosis:
The Children's Tumor Foundation. is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF).
https://www.ctf.org
Prader-Willi Syndrome Association (USA):
PWSA(USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those impacted by Prader-Willi syndrome.
http://www.pwsausa.org
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