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ISOP Stories |
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Dylan was born in October of 2006. He was born 3 months premature for unknown reasons. I had no complications during the pregnancy, but started dilating and having contractions at 25 weeks. I was put on bed rest for 3 weeks and took terbutaline to try and stop the contractions. At 28 weeks, the labor could no longer be stopped. Fortunately, the doctor had given me corticosteroids a couple days prior to his birth which helped develop his lungs quicker and he had a pretty smooth course through the NICU. (continue...)
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My story is about two of the sweetest little boys you’ll ever meet. Cameron (8yrs.) and Dylan (5yrs.) The two brothers have many things in common, such as huge smiles that light up their whole face, an infectious laugh, and scoliosis. Although they were both casted in plaster in Dec. 04, their journeys to that point and after are quite different. I’ll begin with Cameron.
Cameron was born on Aug. 28, 1999. Although he was born at 38 weeks, I started going into labor at 34 weeks. With medication and bed rest we held off for four more weeks. (continue...)
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Devyn was born October 3rd, 2005. The pregnancy and delivery were anything but normal. I had a sub-chorionic bleed until my 5th month of pregnancy that almost caused me to miscarry. The delivery started out normal until I started to push…. He got stuck twice and then was not breathing when he was born. After they resuscitated him he was fine except for his purple and blue bruised face.
Devyn seemed very healthy as a baby except for a milk allergy. He rolled over early, sat up at 5 to 6 months, and started crawling at 9 months, and walking at a year. It was then when we noticed something alarming. He stood in front of me one day in just his diaper, when I noticed that his back looked different. I mentioned it to my husband who knew it was there, but found it easier to pretend there was nothing wrong. (continue...)
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Rylie was born January 29, 2006, full term by cesarean section. She was a healthy 5lb 14oz little girl. Three weeks after Rylie was born my mother brought to my attention that Rylie kept her head tilted to the left. I took her to see the pediatrician who confirmed she had Congenital Torticollis and referred her for physical therapy. At 10 months old the torticollis had resolved, however Rylie still had a very obvious hump on the left side of her back. The physical therapist thought it was a muscle, however I myself had progressive adolescent scoliosis and my gut told me it was not muscle. I scheduled an appointment with a Pediatric Orthopedic doctor at our local children’s hospital. Rylie was 10 months old at the time of her visit. (continue...) |
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After having four daughters, we were thrilled to learn our fifth child was a boy. His pregnancy and birth progressed in a typical manner, and we welcomed him into our family in July of 2007.
As a newborn, Jackson was sensitive to any dairy I would eat and began projectile vomiting. He was evaluated at St. Louis Children's Hospital and diagnosed with reflux. Because he would aspirate if he was laid flat to sleep, we had him sleeping in a semi-upright position in his infant car seat. (continue...) |
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Evan was born August 7, 2005, four weeks early, but overall, a wonderfully healthy baby boy. As a mother, I thought that my baby boy was just perfect! I did, however, notice that his ribs did protrude quite a bit on both sides. I attributed this to him being a chunky little boy! A very dear friend of mine discovered at four months old that Evan displayed some characteristics of scoliosis and we referred this concern to his pediatrician. (continue...) |
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Madison was born full term by cesarean section on August 26, 2003. At birth, her pediatrician noticed a click in her left hip. An orthopedist was called in, and she was immediately placed in a Pavlic harness. She wore this removable brace 24/7 for three months. Under no circumstances, we were told, should it be removed. Finally, when she was three months old, I gave Madison her first bath and noticed the hump in her ribs. (continue...) |
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Breann was born in 1997. She was approximately five weeks premature and weighed 2420 g length 49 cm, head Her Apgar scores were 8. She was noted to cry spontaneously but her color remained dusky and she was given blow-by oxygen followed by mask CPAP because of diminished breath sounds. Following these interventions she improved in color. Because of her prematurity, ongoing oxygen requirement, and apnea she was taken to the newborn intensive care unit and placed in an oxygen-concentrating hood.(continue...) |
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Brooke was born on July 7th, 2001. At 4 months old, intuition told me something was not quite right.
At 6 months old, I noticed that her back was curved slightly. My father and her father both agreed.
I called the pediatrician and was seen the next day. At the appointment, we asked about scoliosis. We were told no, but to ease our minds an x-ray was taken. They called later that day to say that Brooke indeed, had scoliosis. At the time her curve was measured at 27 degrees low thoracic, and 20 lumbar. (continue...) |
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Updated November, 2006
Moriah was born November 6,1996 by C-section. The next morning upon check up the doctor heard an abnormal heart sound and called in a cardiologist. Moriah was diagnosed with the congential heart defect Tetrology of Fallot. They immediately transferred her to the NICU for observation. On the fourth day after her birth my husband Travis, and I took Moriah home. Ten days later at her check up with the cardiologist who diagnosed her, he informed us that Moriah needed surgery as soon as possible. (continue...) |
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Updated November, 2006
After two years of extensive research, I was finally able to locate the only person on the planet willing and able to help my child. Unfortunately, he lives in France. Luckily, I made contact with him before he retired in June 2000. His recommendation was for a procedure considered experimental, and not commonly practiced in the U.S. It consists of halo traction, a specialized, two-piece, adjustable plaster cast with turnbuckles, and Bi-Pap breathing exercises. The combination procedure was performed on October 2, 2000 on 2 ½ year old Olivia & 3 1/2 yr old Breann at the Shriners Hospital in Salt Lake City, Utah. (continue...)
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Tyler was diagnosed with progressive infantile scoliosis in December of 2002.. His thoracic curve was measured in the high 20's, and progressed to the high 30's within a couple of months. We were told to "wait and see," and that surgery was inevitable ( growth rods, fusion ). (continue...) |
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Updated March, 2008
Kylie Anne Lether was born August 8, 1997 in Salt Lake City, Utah. She weighed 6lbs. 10oz. and was 21 ½ inches long. She was born with Infantile Idiopathic Scoliosis and Developmental Hip Dysplasia. Her back had a big hump on the left side, which was her spine lifting her shoulder blade up. Her hip sockets were straight instead of curved and there were no femoral heads. Doctors are sure both of these problems were caused by the way she was positioned and had ran out of room in utero. Kylie was full term, breech and on a diagonal facing outwards. I was told that she had to have been in that position for quite some time to have caused such damage. (continue...)
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Erin was born on February 2, 2002. It would have been her Maternal Great Grandmother's 95th birthday, and Erin was the first girl on the paternal side of the family in 90 years!
At approximately 37-38 weeks, I had an ultrasound to make sure things were on track. There was a question raised from that ultrasound as to whether or not the baby had both of his/her kidneys. I was instructed to mention this to the L&D nurses after the birth of the child. We did not know until the birth whether it was a boy or a girl.. (continue...) |
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Updated January, 2008
Siobhan was born June 9th 1999 in Vancouver, Canada, 4 days late. Her birth was normal. We noticed at about 4-6 months old that she didn’t bear weight and, when her feet were on a flat surface, they pronated (rolled inwards) quite severely.
Our family doctor sent her to see an orthopedist at our Children’s Hospital, who explained that she would need orthotics when she started walking. Then, upon closer examination, he remarked how long her fingers and toes were. He referred us to a genetic doctor to have Siobhan checked for the Marfan syndrome. (continue...) |
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Cole was born at 36 weeks gestation as a healthy and happy 4.5 lb. baby on March 9, 2005. He has a fraternal twin brother named Jack who does not have any signs or symptoms of infantile scoliosis. At around 4 months of age, we noticed that Cole's chest wall seemed to protrude quite a bit. We didn't think too much of it, but at his 6 month pediatrition check up we pointed it out to the doctor. She turned him on his stomach, and we then noticed a few small folds on the right side of his back. She immediately referred us to a pediatric orthopedic surgeon who specializes in scoliosis.
(continue...)
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Updated March, 2008
Jake was diagnosed with infantile scoliosis at 3 ½ months old when an x-ray was taken to rule out pneumonia. My maternal instincts, however, told me something was not quite right before that. While holding him in my arms, burping him, and bathing him, I could feel that his little spine was bent. But I told myself that I was being paranoid--that he was just a baby he and just wasn’t very strong yet. The x-ray that confirmed our fears showed two curves: a right thoracic curve that measured 20° and a left thoracolumbar curve at 19°. (continue...)
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Our beautiful little boy was born on the 3rd of November 2002. He was our first child and he looked absolutely beautiful. The midwives felt Nathan looked blue and was too labored in his breathing. He was taken straight to Princess Margaret Hospital (the children’s’ hospital in Perth) where he was intubated immediately, with wires and tubes coming out of his navel and lines in his arms. To see my baby the next day on a ventilator was horrific. (continue...)
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Nick was born in Las Vegas in the fall of 2000. The pregnancy was without incident, until the time of delivery. My OB had decided Nick was too big, his head was in the right spot, and he was ready to come out. She (my Dr.) wanted to induce labor, so we showed up at the hospital as scheduled. Once we got there though, the nurses made no secret of the fact that they disagreed with my OB, who was not present. They said I wasn’t ready, the baby wasn’t too big, and that I shouldn’t be there. (continue...)
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Our daughter Bridget was born on the 22.2.01. She is the fourth child in our family and her two brothers and one sister were over the moon at having a new addition to the family.
Bridget spent her first year drowning in the attention of her siblings. She sat on her own at about 8 months and it was at this time that I noticed she seemed to sit more on her left buttock. Looking back at photos she also had her head turned to the right in most photos, though I did not pick that up at the time. (continue...) |
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Updated March, 2008
Our son Ian was born on August 15, 2004. He was a full term baby and
appeared to be a very healthy baby boy. Just before his 6 month well-baby
check up, he began to sit up on his own. At that time, I noticed that the "muscles" on one side of his back seemed to be really big and he always
leaned to one side, but I just chalked it up to him just learning to sit.
When we brought him in to the pediatrician for his 6-month visit, she
noticed that something seemed wrong with his back. She didn't know what it
could be, so she brought in another doctor to look at him. (continue...)
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Lily was born April 12 2004. She was diagnosed with plageocephaly at approximately 8 months of age. She was placed in a corrective helmet by the orthopedic physician, which was worn 24/7 for 4 months. This corrected the flatness of her head and restored its shape.
At 13 months of age, Lily had just started to walk. (continue...) |
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